October 24, 2009

Not so clear

We got what the oncologist called "relatively good news" yesterday. It is not a synovial sarcoma, which was what was expressly feared. The tumor board at Memorial Sloan Kettering absolutely ruled that out. The tumor board came up with three possible things: the first two are benign and the last is a non-aggressive low growth malignancy. They just cannot be sure. Yeah, that's right, I stumped the tumor board consisting of specially trained radiologists and pathologists and oncologists.

So, here's what they recommend (and what I will be doing): surgery on Nov. 4 to remove the entire mass by way of a semi-wide excision. The surgeon will not go as wide as if it were a synovial sarcoma but not as narrowly as if they knew it to be benign. This means that I will have a 3 hour or so surgery and they will take a good chunk (but not 70% as I had once feared) of my triceps leaving me with months of physical therapy and a permanent impairment. There will be no chemo and probably no radiation at all. That's good news.

The impairment bit is bad news. I take tremendous pleasure out of my daily game of squash on the weekdays and my tennis on the weekends. That will stop for months and may not come back. If I suffer nerve damage during the surgery that he, a micro surgeon, cannot successfully repair, then I can really kiss full use of my arm goodbye. The possibility of nerve damage is quite real, we were told yesterday.

But this is still, mostly, good news. It is better news than we feared, if not as good as we were hoping for. I am not looking forward to the 4th.

Yesterday, emotionally, was a horrible day. I won't delve into the details here (or anywhere) as I am still numb from it all. Suffice it to say that I was a total basket case. Probably still am. Can't really just flip a switch and turn it off. The mental connective tissues are still stressed, I think, and just because most of the pressure was removed does not mean they snap back into place. No, I understand that there is no such thing as mental connective tissue (at least in the way I am using this) but that's just how I visualize and hence describe it here.

Thank you all for your notes and letters. I am sorry that I have not answered them; I will. They have meant a great deal, more than I can really say.

Posted by: Random Penseur at 04:34 AM | Comments (1) | Add Comment
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1 Thank you for updating so quickly, I was worried about you. I am both happy for you and sorry for you. After the surgery give yourself at least 18 months to fully recover physically. Also give yourself plenty of time to grieve for your arm as it was and to feel plenty sorry for yourself. Yes, you escaped a death sentence, but it does not follow that everything else is wonderful. Give yourself permission to feel angry and ripped off. I hope the unsolicited advice was not offensive. I just wish someone had told me these things when I went through something similar. Still in my thoughts and prayers. Miriam

Posted by: miriam at October 24, 2009 07:38 AM (fUxc6)

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